Tailored data collection

If your research question requires specific data not collected in the PHARMO Database Network we are able to contact our data providers for additional data, which can be linked to our routinely collected data. Additional data collections, such as data collected from chart reviews, patient-reported outcomes (PRO) or data from an interventional trial among patients in the GP setting do require PHARMO compliance committee approval, ethics review board approval, healthcare provider approval  and, when needed, informed consent. PHARMO collaborates with INSZO and STIZON for the collection, processing and linkage of patient identifiable data. After obtaining the required information for research, all sensitive personal information will be removed by STIZON before researchers are allowed to access the data and perform the analyses.

Reporting of the chart review information, PRO or data from an interventional trial among patients in the GP setting will never disclose information traceable to individual patients, in accordance with WMO (Medical research involving human subjects act).